Well that didn’t take long. Almost as soon as my little red car eeked up the steep driveway to our little red house, I didn’t feel quite right. After a weekend of hoping it would get better, I went to Mayo on Tuesday and initially baffled the doctors. With symptoms getting worse, we made the trek again to Mayo last Thursday to figure out what was really going on – something called hemorrhagic cystitis (HC). You can look it up if you want. Not fun.
We go back to Mayo tomorrow to learn more details, but basically it’s a painful condition caused by one of my dirty chemo drugs – Cytoxin – that sat in my bladder too long and wrecked things, even though we took all the proper precautions.
So in addition to the IV anti-viral medicine at home, I’m now on some serious fluids for 12 hours a day. Let’s just say I make a run (or downright sprint) for the little girls room about every 8 – 30 minutes. It’s pleasant, really. I don’t know how long I need to be on these fluids, but the docs ordered a month’s worth. Ugh.
Now I’m my own little walking pharmacy, with UPS boxes crammed with medical supplies arriving almost daily:
My body needs to stop being so dramatic. It’s one big fun circle of revenge. My osteosarcoma treatment caused thyroid cancer and MDS, and now the treatment for MDS caused hemorrhagic cystitis. Pull yourself together, body.
Jimmy likes to remind me that I’m doing pretty well for having my entire immune and blood system kicked to the curb, but these setbacks are hard when I’m supposed to be getting better every day. But we decided I have a new opening line: “Hi, my name is Jenna. I can grow a new immune system. What can you do?” It will also make a nice bolded bullet on my resume.
Next time I hope to have real adventures to report from the Motherland.
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